Duchenne communities
Connect with organizations created to help families living with Duchenne
CureDuchenne
A nonprofit organization offering education and support programs for parents, caregivers, clinicians, and physical therapists
Jett Foundation
A nonprofit organization that empowers people and families impacted by Duchenne through transformative programming, educational opportunities, and ongoing support
Muscular Dystrophy Association
A voluntary health organization that provides access to support and programs for people living with neuromuscular diseases
Parent Project Muscular Dystrophy
A nonprofit organization connecting the Duchenne community to news, resources, advancements in research, and each other
The Akari Foundation
A nonprofit organization specializing in DMD that educates and empowers the Hispanic community by providing resources, awareness, advocacy, and education entirely in Spanish
“My advice to new parents who found out their son has Duchenne muscular dystrophy—you’re not alone.”
– Gil, father of Landon
Based on personal experience; your or your child’s experience may be different.